More about me...About Suffererposted on May 16, 2008 I'm in pain physically and emotionally while I'm typing this so I'm hoping what I have to say comes out right. I'm going through a tremendous amount of issues right now and I really need some help but have the most trouble finding somewhere to turn. I have a rare pain syndrome that is not commonly heard of. It's called vulvodynia. It causes me excruciating & debilitating pain. At one time I experienced it almost every second of every day for the last several years. There's no cure or even any sure way of knowing the exact cause....it makes you miserable and unsure of ur life from day to day. I also suffer from depression. The vulvodynia pain, I guess u could say is comparable to nerve damage pain (which is in fact what it seems to be in my case). I don't know if I'll ever be free of this situation again but for the time being the only thing most recently that has been helping me to function enough and not suffer this every single day as before is the Cymbalta medicine I've been taking. I also believe in holistic methods but nothing else so far helped relieve the extreme pain and I have a young child to care for. I have tried many many medications & have been & felt like somewhat of a guinea pig. This situation started for me around the age of 19 and I am now in my 30's (Off and on during that period of time). I cannot work because of these disabling situations and I receive SS disability once a month. I tried to fill my prescription for my medication and for reasons beyond my control (some error of some sort), my insurance that covers it was off and will take at least a month to be corrected. My medicine costs $163 that I don't have. Making matters worse, I am in a period in which the pain is at it's worse (which happens sometimes) and this is the worse time for me to be without my medicine. I can't find anyplace to get it free or get samples. I NEED HELP. I am behind in my rent $227. I have bills I am behind in that is $191. My glasses are old and broken (I'm very nearsighted and the type of glasses I get cost me $350-$400), My child's birthday is here, I have no money to give him anything right now and that in and of it self is so hard (he's a great kid and I love him dearly)and I have little money for the basics of food (which has just been getting more and more expensive). My medicaid was cut a long time ago because they sent the recert to the wrong address, I've tried to apply since then and all I get is the run around. Food stamps is the same thing. I'm just TIRED and I neeed HELP PLEASE SOMEBODY. If u hear me and u can, please help. I am humble and appreciative. Thank You ^ top
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